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Perinatal palliative care services and needs of health care professionals working in Swiss perinatal centres - A nationwide survey
Manya J. Hendriks, Newborn Research Department of Neonatology, Perinatal Centre, USZ
Tuesday, Jan. 21, 2020 · 10:59 a.m. · 09m 27s
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present here today i'm when an example stalked over
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hard unit taught you can start
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um we all know that despite medical advances and new diagnostic possibilities
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i'm still there is nearly about around forty percent of all childhood that's occurring
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in forty four weeks life so it is of critical importance that health care
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who are working with these patients and these families that they have
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a good quality handy here and perry needle palliative care is supportive care
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he's given during the last during end of life of the features and you weren't
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however little data is currently i'm
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available for switzerland an international data literature
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is pointing to either a lack of clinical guidelines a divergence all the um
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content of clinical guidelines and also hive right the t.
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so but aim of our study was to examine the perry needle palliative care services and in switzerland
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and also to look at the factors that influence
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healthcare professional satisfaction with palliative care in their unit
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so what we did is anonymous online
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he invited all physics
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sure staff to participate we had a response rate of fifty five percent
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and and number four excuse me four hundred and thirty six healthcare profession
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participated in this study and what we will show you here
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of the results that we have
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so we asked healthcare professionals whether they were overall satisfied with palliative care in their unit
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and what we see here is that i'm a relatively large amount healthcare professionals were sometimes
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satisfied with palliative care we also asked healthcare professionals to provide us with a
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little bit more information about why they believed they were satisfied or dissatisfied with
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are you need what we found is that overall health care professionals that were very positive mentioned that
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this was really a team effort um that despite for example many time pressures that they were facing
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the motivation of the team was allowing them to provide families with who have lived
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here in there you need but we also found is that for health care professionals that
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told us that they were sometimes i'm satisfied or not satisfied with all that this was off
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having clear guidelines
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really mean a possible recording palliative care under unit were that there was a palliative care
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you just so what we intend it is a regression and
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that's the gate what were the factors associated to
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higher satisfaction added here and rather unsurprisingly from her
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what seems coming also from the quotes that i just
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showed you is that health care professionals who reported haven't terry
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here guideline in their unit having and training on perry
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needle delegated carrying their unit also having a very new
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the double your unit were factors that significantly
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higher satisfaction how we also found is that health care professionals with the nursing back oh
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lower satisfaction
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so we then also asked whether healthcare professionals had a guideline available in there
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and the overall more health care professionals reported to have a guide
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the region around sixty percent as opposed to the french region however you must you must be very careful with
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providing these kind of results because we also found that uh months the centres indeed
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very large differences so healthcare professionals that mentioned that they did
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have a guideline actually for right within the german speaking reach
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twenty five percent to eighty six percent now i do not have
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time to go into this during this talk but we also actually asked
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what's the guideline available in that unit for out
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of nine currently have a guideline other units are also
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working on getting a guideline and and something that maybe we can go into in the
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discussion is we also compared where there um
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healthcare professionals were aware of having a guideline available
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here i'm showing you what health care professionals out but they were where
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we then also asked healthcare professionals whether they were offered for their
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education and training within their unit compare a needle out if here
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and here we saw similar difference with one forty percent of health care professionals having this
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option in their units in the german speaking regions um but then again also a lot of
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we in
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i'm from twenty percent
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we asked healthcare professionals that told us they did not have a guideline whether the work
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i leave here and the large majority of healthcare professionals stated
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that they had this wish we also asked all healthcare perfect
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needed for their education comparing you know palliative care in their unit and also here so early
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professionals who stated they did have
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so this was the first step over study to gather national
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data on the services in the needs um of healthcare profession
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with regards to perry needle palliative care what we found is very large
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availability of guidelines very neat valued care guidelines but also in further
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training within units and we also found that there was higher said
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with valued care overall provided that there was
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a guideline available for their training and also
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so interesting to stress that this in fact was not found
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interest
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for exploring discuss reasons why this is so
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i think um we should open and move towards
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a discussion of i'm asking ourselves whether it is necessary
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no clinical guideline
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here um it's important for
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some of the centres it's important to know that some of the centres
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there is no need to start from scratch to create new guidelines when
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that you have at that time and i believe it can be important for families and also for the health care
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but they can offer consistency here
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i would like to thank of course all the healthcare professional that
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that have participated in this study and
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half
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ask questions
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did you difference between professional groups that's
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the the the missing stuff was asking for
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apartments and don't lose so and social economic who is uh_huh yeah we cut scene
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no answers but there were no significant differences between the preference and me for wanting guide
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and in no one can hope because the the biggest
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sentence that's molten guy plants compared to the smallness introduce or
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not necessarily
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of course in general yes but not
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centres that are large
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i think it's if if i have some time i think what is
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also important to know is that i'm those centres that do have a guideline
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the seventy percent healthcare professionals are actually aware of it
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so for their training in those centres that have guidelines
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and doctors around fifteen percent
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oh no there's a guideline within
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fifteen percent had get
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i see that there is not
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it's a training is really essential also for those units that have
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so compliance come together who is the
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uh_huh well or not
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it's
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