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our and rounded bishop she's a freelance journalist in caregiver based in switzerland
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um especially it's mother was diagnosed with dementia few years ago
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her mother lives in malta uh so it's the added burden which is so typical
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oh of the long distance caregiver uh she's not has
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a better go to the mall discuss scale
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uh uh not being able to a sister bother cared for uh her mother
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and she's become that remote caregiver travelling back and
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forth and a very disruptive of her life
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also joining as preston makes las who works as an international here
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strategy linger for all timers disease at roche in both of switzerland
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in our current position she is supporting all timers disease
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collect all development programs in teams are on care related and sites in activities
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and it's leading evidence generation activities to do
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a support discussion of external stakeholders
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and prying prior to joining row she was working as a health economist in stock
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she holds a master's in viral medicine and a p. h. d. in epidemiology
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from the carolinas got institute in stock or i'm going to move over
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to our our on our uh we're also going to open the or
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or questions as we go forward but i first what oh what
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speaker that area i'll tell me you're a young one then um
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the life in front of you what does being a remote
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caregiver do jihad is it just from your life uh
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okay yes i actually wrote some notes it because i i i knew of it i don't want to get overcome by emotion
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uh and i when they're angry first asked me to uh to
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join this time that i i my first reaction was hot
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you know i i live in cities and i didn't do that not and
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in the process and i also interviewed and very foreign magazine animals so
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and throughout that journey i realised how much how much a sickly
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my life has changed my sister's life estate my sister lives in england so she could it carries the
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the the person of goats and uh and how well
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um uh how it has transformed our family completely
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my mother was only diagnose three years ago but it feels like
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a lifetime ago for us the yeah the decline has being
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and when my father is the twenty four seven care we are
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rare the supports um mechanism for him that we are not
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yeah and uh uh the people that he can speak to that you can share with we also have to
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help and now i'm in a learner if you were things how to base my mother
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how to calm her hair paint her toenails and uh i haven't organise hairdresser
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um we buy her clothes shoes a medication has changed her body physically
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i'm i'm still we've we've had to do all of that
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um i'm right by supporting can i also realised that
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and when he is focusing so much on looking after his wife
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he has forgotten to cough to himself he's eight years old and yes type two diabetes
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um as a well i'm a i'm the one who
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work keeps reminding came to look after himself
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to where i'm a ensure that he doesn't stop his uh his hobbies and his commitment
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um uh to somehow maintain his life it's impossible to work to
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maintain normality has changed to have a different definition for it
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um uh the most heartbreaking good thing i guess for me to try
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to explain to my children what is happening to to their grandmother
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sadly dave are too young to remember i'm a grandma when she was normal
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um i was so well um that it's it's a very difficult
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to to uh explain to them no she's not crazy
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um uh this is her norman and it is how her condition that makes
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happy hayes in that's way it is um it is an invisible condition
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if you see her now she's a very peaceful one under the falls off of her in the in the program and on the website
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um um and uh you will not realise that there's anything wrong okay
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with her and i think that is part of the problem that um
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and you you might find that people wouldn't know how to behave
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um with her how to help her they don't realise that you actually doesn't it's
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help um uh you know she's in a public place like in a restaurant
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i thankfully mozart being a small close knit community
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um that you do find that that's a kind of a
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supporting people are are quickly i'm not very understanding
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and i found that my parents friends have rallied from them and uh they haven't abandoned them
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um that on the contrary they make sure that once a week
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they go outside they socialising and mom is there and she's involved before
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we move on to question i really want is sort of
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he's a part some of your comments number one of protecting
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all of one's dignity teaching the farther apart these press
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uh take the mother out and that the uh their father forgetting who he
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is uh the intensity of care over time tends to do that job
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very do what would dress that jenna and angela that whole issue of the caregiver losing
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the sense of self and jerk the caregiver also as potentially the second patient yeah
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i think we we think after that a lot and i think it again it falls
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or on the female caregivers in general although your father is a counter example
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but but what we have seen is that uh you know research is that
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women are there or or their parents are much more likely
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to do great yeah their own activities that take place good
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care of themselves that man or perhaps because men are
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able to get the support of other family members in your
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case there are no you have no brothers right
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so but if if you had brothers and you with
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the only sister you probably be the only caregiver
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so uh i think that that that's an issue also the men tend to figure out how to get
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the help they d. o. bad to and women tend to take on more of them and
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eventually have the family dynamic of with the children um do you know about them
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'kay given doesn't yeah occurred in isolation within the same sweet
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the only other those that can give recently um with its policies
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and do we know who did have eluded to it in my presentation
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yeah a long term care givers there maybe
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love mary dissatisfaction tends to decline
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um as as as being an instance when i'm in our study
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we found that fifty four percent of the caregivers would depressed
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and we know the the the slopes to put into a relationship
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and the i'm inspired to of what we
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think about more to being deterministic country
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never the less the publication of here from the woman is this enormous
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oh and did i think it didn't even come to the
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the um people are more likely to head man
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because we see more of these miss scheme pool going he's stealing go there to hug
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um but when there are expected the and the if
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they don't want to be or stigma time used
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as not being good moon of can be better
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and with the backbone you know so um
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and they have to face a lot of issues i mean if you
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see it i it when you see feminists who are facing this
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in the clinic for example i remember the smart they're coming
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to see me with shared yeah i'm teenage daughter
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yeah i would too quick ptolemy opening goal here here
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pictures of of of course cock were showing
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and the mother told me i don't know what's going going she's
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drawing things that to me what's going going with here
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and s. think start to to one room no this for the mother was
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a matter of fact you had to look after her for dinner
00:09:15
the daughter didn't find her dear for six whole years before there lived around the corner
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uh never the less uh every day she went in and the mother was not the
00:09:26
right and the good to have a you know her face was so ordered
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and it was only after ten p. which could talk about d. n. get over booted meant
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bit how he's going to do with their started to soften and didn't want there
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for the first time could grow i you know we both would be paying bitch was
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going to be that's no to the area
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economics the internet are you worried about
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your finances in the united states everything is out of pocket so
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we have a family's going bankrupt medicated in our country
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twenty three billion dollars annually spent on here because families go bankrupt
00:10:09
care that is unfortunately compromised out what is what are
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your anxieties so yes them as you go from
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the finance perspective um uh it there there are um
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a multitude to get a lot of support
00:10:24
but uh not everything is covered and that also where i'm at the army's test it
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so uh my father is having to pay for quite a lot of uh my mother's medication
00:10:36
for her of course in my case i have the added cost of a flight and found is that um
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which i gladly and i don't even counts that i
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i cannot quantify what they have done for me
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but um in terms of uh anxieties it's more dings idea of the future of but um
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uh who will look after mama what if my data processor if anything happens to him
00:11:03
ten years let's pick up i don't even counted like if you login
00:11:08
did in inventory of what when and as caregivers due any looks
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light a dollar amount to that with people begin to think of it
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differently when you do it as part of who we are
00:11:22
but the economics problem that replace a us and most as you
00:11:28
mentioned governments don't have a plan b. if we go down
00:11:33
no and and you know it on december fifth it with the international day of value during where
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okay and actually there was some figures that with rain here and there and tons of quantifying
00:11:44
the number it in terms of economics that is actually um invested or tons of work
00:11:50
and there is figure is not very hard to pinpoint i think also because there
00:11:54
are just too many things that and there are not week with it
00:11:58
um uh i think love is not recorded which is good but it's not because i have enough before and somehow
00:12:05
but but at the same time i think there is a difficulty of not being able to quantify that
00:12:12
and i think we need to utilise this in order to enhance that sense of urgency
00:12:17
um i i think if i may add in terms of the k. giving because my dad also take care
00:12:23
of my mom has suffered from dimension ten yes and we ran it is children around my dad
00:12:29
but i think the moment is when when there is a tipping point would you
00:12:33
know it's children relies that that but in its pieces strong on this sounds
00:12:39
that you end up on an emergency they bring in one to emergency what and the other one too
00:12:45
a temporary place where you just hope that things will be fine and i think we underestimate that level
00:12:51
and and with it the lack of uh of of the results of places that are available
00:12:57
i mean you you have to it's really hope that someone who passed away
00:13:01
so that would be if we that my mom this is not acceptable
00:13:05
to think that way so i think we we actually underestimate and
00:13:09
and and there is a a stigma in the silence
00:13:13
we don't talk about the reality of what's going on here
00:13:17
a christian i question i'd like to me the shield because i think
00:13:23
um when you live in no hope let's space and i don't when i
00:13:28
say uh when you get a lot one dignity nudity of them
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the reality is no matter what i do for my husband or my
00:13:36
mother after all these years the disease is going to win
00:13:40
so the ability to learn how are meant and let
00:13:44
me helped of research let me get close
00:13:48
i believe the caregivers are really critical to both
00:13:52
even gauge manhattan retention in clinical trials
00:13:56
and we are not well you look even close to the bedside with the real real
00:14:02
life in real time activities go well on it should be starting in so
00:14:07
sure your perspective but you didn't come here formally you can hear informally to join us but
00:14:13
it would be very valuable from your perspective so it's a good
00:14:17
question complex clustering as well i think there's so many layers
00:14:21
thinking about the disease and especially from a caregiver burden i come from a perspective where
00:14:26
you try to value record nice recorded burden i can understand that they're smart where
00:14:33
yeah words behind this for it as well i'm from a from a clinical trial development
00:14:39
and from from a farmer development in alzheimer's disease we can't do this without caregivers
00:14:45
first of all having a caregiver sink using criterion to war crimes
00:14:50
and that's of course we logistic perspective but it's also due
00:14:53
to the fact that we need caregivers to really understand
00:14:57
how that the disease progresses also quality is not only to ensure that the patients come
00:15:04
to my site salsa to ensure that the quality of the measures are hardly recognise
00:15:09
but then it's also about identifying these patients se many times it's
00:15:14
caregivers to recognise symptoms before the patients that in itself
00:15:20
and the trials that we're looking at are not actually focusing on patients that already developed dementia
00:15:26
it's the only for what basis when the that the c. e. c. steel in yeah independents the each
00:15:33
but so having the recognition of these theses understanding it is
00:15:37
what is also very important and then we come
00:15:40
to the value it's right and and the burden and we also understand that this is the family disease
00:15:47
and if you look at many of the stakeholders that we are interacting wheat
00:15:51
they don't recognise the burden from calculate perspective and the
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sea lice that many countries that's not that much
00:15:59
we can do about it but they look for patients respectively look from a direct medical cost perspective
00:16:06
i mean this disease what is seventy percent of the cost or on the caregivers
00:16:10
so it's also something we really need to try to understand how to
00:16:16
work together with governance and policymakers excellent also recognise that this goes beyond
00:16:22
a patient is the family it's a sign see there anyone breaking point yeah i am i right
00:16:30
i mentioned earlier up high benefits for caregivers and because of that because it
00:16:37
improved carryover well see we were able to demonstrate what i have here
00:16:42
i was on the uh there's no place it's journals asian for the person with the match
00:16:48
so we improve the quality of life of that caregiver and through that we improve
00:16:53
the quality of life of the person with dementia who've in most cases
00:16:57
is better off living at home if the k. giver is able to continue do
00:17:02
provide here and the estimate is the the reason that i
00:17:07
yeah directing a large family support program was that we
00:17:10
that we did a study of the potential cost savings of
00:17:14
doing an intervention like the one that we tested
00:17:18
in the state of minnesota population of five and a half million people
00:17:22
the estimated cost savings in fifteen years with p. nine hundred ninety six million dollars
00:17:29
just in falls on his social station and we weren't able to quantify
00:17:34
the cost savings to the mental and physical health improvements for the carriers so there's a huge
00:17:40
cost there is a huge how easy for finding interventions and
00:17:46
providing interactions that whole family versus well first off
00:17:52
yeah why caregiver internationalism of the component intervention that includes
00:17:56
and probably the most important ingredients family cancelling
00:18:00
so includes individual passing family cancelling an ongoing support of the family came here
00:18:06
for as long as he or she needs and i the evidence
00:18:11
but the overall yeah that's about physical and mental health improvements were not what really sway the
00:18:16
government of the state of new york with with our number that we were able to
00:18:22
we recently run a study looking at the impact of care giving on caregivers it was a virtual study
00:18:28
and oh we had a self report and then a carton of baseline
00:18:33
what we found was that women self reported as or right
00:18:39
but when you look at them on the cognitive baseline level fifty
00:18:42
seven percent were operating at less than fifty percent cognitive vitality
00:18:48
what it says is that our mothers taught as well to be still work
00:18:53
and push the rule and we have forgotten as the point was made earlier
00:18:58
we don't see the forget who we are and we know on you
00:19:02
need that narrowing that is so so critical so let's stay with
00:19:07
the notion of mirroring you have people who had become better with the
00:19:14
levin care at molly how sick what does someone who has
00:19:20
in made well made whole bring into the next person who come snow from
00:19:30
not only host to log window be remote grab
00:19:33
improving right because we'll blow when you reboot
00:19:38
what would be the one who example router d. c.
00:19:41
was who really goes to do the ratio
00:19:45
a new c. you read or depression due to game you do
00:19:49
um are going from probably remote was murdered a successful murdered
00:19:55
are are probably are bubbling room
00:19:59
most resume only basic games you was pretty so i'm good you read
00:20:05
mostly so to preclude each grade c. improve lord knows
00:20:09
who's working with those two speaking europa goes
00:20:13
but why this is happening because well the arcos would would be
00:20:18
o. b. r. r. goes we because we are going to read through remote where we're going to go really
00:20:23
uh are there were let's do what we're working demo you remote you're more goes with your whole so
00:20:30
a basic so we're we're we're we're what loser mm
00:20:35
a regular expression to work with the improving
00:20:40
but improvement where you do different buttons rude if you got was a quarter
00:20:45
um how barry brewer broke thinking reduces marlowe bigger
00:20:50
r. one picture remember my like with this
00:20:53
was he was look view was remembered you order most argued but work
00:20:59
or or or or gruber remembered most to see your mode behold
00:21:05
was up once a probable room o. c. c. speaking durham only also through the tube executor open sort of mode
00:21:11
this is the change this shit happens to see what i'm unsure how do we
00:21:17
get 'em governments and organisations to understand
00:21:22
that every one in the family
00:21:25
is impacted by this disease whether it's grandchildren who don't understand
00:21:32
of what's happening or why they've missed the data into routes generations which
00:21:37
is so offencive because you have no stories to pass on
00:21:42
um you have nothing to share and you have to deal with that reality um
00:21:48
how to influence governments is true bowl in the post news pounds shillings and
00:21:54
pence also say this is the only way and that i am
00:21:59
so why actually we we carried out our study malta
00:22:03
to influence policy and to say to government
00:22:07
that it's not just the patient and it's not just the
00:22:11
caregiver but it should be a mini inclusive services
00:22:16
uh because the children with behavioural problems will end
00:22:19
up with much bigger problems later on
00:22:23
and do we have to understand in this isn't on the research
00:22:26
don't ever have to take the clinical families i've seen
00:22:30
you know they don't a lot of disagreements in the family when dennis care giving
00:22:35
disagreements about financial matters disagreements about the seriousness of the problem the
00:22:41
disagreements above depreciation off to work disagreements about the x. then
00:22:47
off to work you should be doing quite there you should put dear m. d. d. depiction tuna home or not
00:22:53
and one or it is estimated that one in four days
00:22:59
oh for all sorts of disagreement and we need to be studying the
00:23:03
pro says says that beep to to every she said get antsy
00:23:09
what happens in feminist where there is a virtuous circle
00:23:14
and to unknown from that and even from ten p. with these people to known from that
00:23:20
and to advocate for their family reggae area includes exams because government
00:23:25
students to have more money and its coffers says it does that
00:23:30
did you notice how every moment up here but shaking their agreement time yeah uh
00:23:36
who do you think that think regarding covenant that i mentioned is global action plans that i have
00:23:41
been adopted by one hundred and ninety full member states of the world health organisation so basically
00:23:48
there are just so many things now that have been adopted that
00:23:50
civil society can claim and the the man from governments to
00:23:55
you know to be implement this action and say they're out there
00:23:59
and i had that civil society will claimant and use
00:24:03
that i very strongly now regarding the element that you just
00:24:06
mentioned on july regarding the family dynamics around k. keeping
00:24:12
and i think that's a very important one but no one's yes and no what tells you how to deal with it
00:24:18
yeah actually half as many members of the family going through different grieving faculty at different times
00:24:25
and uh you know one person is in denial indian when it's already depressed and
00:24:29
the other one is already in acceptance and moving on in taking action
00:24:33
well one says like what's going on i mean nothing's happening you know and so we
00:24:38
for me five siblings i can tell you we had the two guys going like nothing is happening because going by
00:24:45
shake shake shake we need to hand you know we need to act and my dad kind of possibly in the middle completely depressed
00:24:51
so i think you know when you when you have these tools um someone was talking about those two i you were
00:24:58
talking about what are the tools we have in our hands when you have the right tools in order to
00:25:03
address the challenges and optimise about recognising where do we stand in with you to what
00:25:09
the floor is open for questions just raise your hand just uh and i'll come to
00:25:13
you but time you let me ask you governments argue about how we should be
00:25:18
name char we care takers are we care partners does it change what we
00:25:23
do irony in and out of time spent all defining yes yes
00:25:29
um i have a point to make and then i have a question so my pulley is going back
00:25:34
to molly house which um is in a country in which women are put on the road
00:25:41
and i want to bring in some other caregivers that haven't been
00:25:44
talked about here which is women from the global south
00:25:47
could travel around the world to earn money for their families by giving
00:25:52
you doing care giving in the global north as we call it
00:25:56
and i just think it's you know it's a question we need to think about
00:26:01
it if we're thinking about when in general or pull vulnerabilities i think
00:26:06
is something we need to consider because um we need to really value their
00:26:10
input as well and and and what what is happening to them
00:26:14
but the question i have is indeed a really appreciated the study that you mentioned um uh they'll i
00:26:21
i wonder in what is known about the physiological response of women
00:26:27
to this incredibly stressful kind of care giving and hell
00:26:32
what are the statistics on the relative risk from care giving of getting dimension or cognitive decline
00:26:39
where six times more likely to get to mention that because of the intensity
00:26:44
of care over here is you're looking at somebody gives it connor
00:26:48
just it's just a matter of time when it happens but who would
00:26:52
like to take on that question not there i can begin
00:26:55
i i it is known the immune function is affected by k. giving
00:27:00
and risk of diseases that affect back through this best mechanism
00:27:05
are there more of you or worse here how are you ask them
00:27:14
that's a so so scary giving it for what it does it by inference thanks this
00:27:23
yeah
00:27:25
yes time yeah i think the first question um the international community it up
00:27:30
to the the so called called of contact on help us now
00:27:33
by which all the countries that can make not to poke and have
00:27:37
a poll factor of help us now to bring them over
00:27:41
um to have more k. giving gay activists and um
00:27:46
and and i think that we have it
00:27:48
we still see it that governments actually do after work and it's too you know nurses
00:27:55
um all you know so what is all factory push factors at the same time we think we need to reinvent
00:28:02
the um uh the the professions of health care you know to to make sure that we can address those
00:28:07
and that will be re inventing things that they we don't go in take 'cause now from other countries
00:28:12
time yeah let me just ask you because right now we have
00:28:16
a big debate about joe that's sexual harassment in the workplace
00:28:20
the uh it never stopped still be no man love standing but how do we use that critical
00:28:26
mass what what really it it says right now is that women have reached a critical mass
00:28:32
in the workplace where we can begin to change
00:28:35
paradigms that we didn't think about touching before
00:28:40
so where do you see the opportunities is it changing the research paradigm what
00:28:46
should we be doing and using these forms uh to propose a
00:28:53
it's a difficult question you're asking me because i just in ages that i'm living in a country that actually doesn't like change
00:29:00
ah well i live in a country that einstein would say
00:29:05
um when i get older i want to die in switzerland cousins that's and everything happens twenty years later
00:29:11
i when it comes to when it happens fifty or sixty late yes lisa
00:29:15
so i honestly i'm here in terms of change agents um i think
00:29:20
in this room we have change agents and if we all do
00:29:24
i would cost us there have the ripple effects that that out right uh from india was saying then we can do something
00:29:30
um i think we'll go down to you how we will
00:29:33
advocate together and push governments to act and actually
00:29:37
a change of changes else i'm not asking i'm not waiting sorry for
00:29:41
i mean people in power to change anything just bits and the and then oh man this is where that
00:29:48
money for there to have dementia and the oh yeah men only go with five brought there with her
00:29:54
i'm but i remember my father turning gummy but perhaps i shouldn't start
00:29:59
the because i would have to take care of the family
00:30:03
but to what i grew up and we i need that support for
00:30:06
white brothers only simply told them listen hey i need you
00:30:11
and they made the time table and they do follow to repeat what button do everything
00:30:21
i i i i i feel that it on one hand i should have her ear
00:30:31
but on the other hand i was brought up to think it was my
00:30:34
job to the the caregiver and so i'm finding myself all that
00:30:38
about what where when you know whether i should file what my friends say
00:30:42
well my my upbringing tells and i think that it was yes
00:30:48
uh_huh there's also the issue uh oh in asia where the culture insist
00:30:54
that it's the eldest daughter that will take care of the
00:30:58
the family and the parents so we have to really look at those cultural differences
00:31:03
i just wanted to uh 'cause i think there is a question about
00:31:06
ah what can we get government to do and how do we get garment interested which i know is that i'd always and had
00:31:13
ah issue but uh i i live in canada where we have a pretty decent hawkeye system compared
00:31:19
to our neighbours and stuff um but yet still we don't have good men to how
00:31:25
um facilities and services that we have long waiting lists and it's not covered under our how care
00:31:31
how do we get government understand that meant to help as as the as important or maybe
00:31:37
more important than or physical how much is it more important but
00:31:42
uh_huh uh yes tyne who jesus taking the flu again but you're from canada and
00:31:49
canada's been doing some amazing things in mental health and indeed it has decided
00:31:54
to invest so much money in mental health as primary health care
00:31:59
true to has decided that and it's ripple down um i said i think
00:32:03
um i'm actually having a sense that even tried only g. seven presidency
00:32:07
will put mental health on the agenda i'm hoping for that
00:32:11
um so so i believe i continued you push your government's because
00:32:16
honestly they are actually lease starting to realise that they need
00:32:19
to put it and put the money to it so that's a good news you don't have that in every country
00:32:27
christine i just want to ask you what okay the
00:32:30
you see in in the states of caregivers
00:32:33
are not even listed on electronic health record so please work on that in your countries
00:32:39
to make sure we're listed it makes care research
00:32:42
extremely difficult out but the ability to take
00:32:46
advantage of the caregiver who wants to help the next family once she would protect
00:32:53
their grandchildren from the future how do we employ them in a way
00:32:57
that is empowering but also what has to the research and knowledge
00:33:03
very good question i think when i mean out talking to
00:33:06
caregivers and and the patient organisations and so on
00:33:10
i have a feeling that the burden on the caregivers so heavy so they don't have any
00:33:14
them time to think about any of these things even though they really really want to
00:33:19
but i noticed is that there's a lot of people going through to jeremy are very very willing to help
00:33:24
as much as possible i think probably means you perspective we are very willing to listen to as well
00:33:29
i guess you have to find the right channel and empower the organisations that are helping out
00:33:35
and reaching between the different stakeholders are trying to find five people that do that
00:33:43
uh because we're so generous we're going to offer to
00:33:45
last question to a gentleman uh oh god
00:33:51
hi prayer perhaps is a provocative but more
00:33:55
technological um innovative uh innovation oriented question
00:34:00
the thing is it at least in the field but also i'm still that's the
00:34:03
future work on depression is um the depression is a higher risk factor
00:34:09
and caregivers have high degree of depression and so one of the ways you could manage a depression in
00:34:16
the caregivers is like giving antidepressant for example or take something that would that would alleviate depression
00:34:23
however when you take antidepressants as you know it reduces entity
00:34:28
and so if you're a caregiver you don't want to be in a state with your input the levels of reduced
00:34:34
so my question is is this the last costs in terms of management in terms of helping
00:34:40
or is there is there a way that we can think off let's say in in iowa robot that could be no way
00:34:47
we could think about having empathy transferred not just like humans but
00:34:51
two months i like i like to eat you played us with the
00:34:56
of robot go ahead and what should i that's what i
00:35:00
was going to say that it that it isn't necessarily
00:35:03
the only solution that necessarily go or what we were able to demonstrate with our intervention
00:35:09
was by improving support for the family caregiver we reduce symptoms of depression significant
00:35:16
so i think we have to think outside the box isn't only about pharmacological
00:35:22
psycho social interventions are essential and and perhaps
00:35:26
that way we get and in the process of improving family support
00:35:30
will probably improve apathy of all members of the family
00:35:35
i would like to me just commenting conclude this very
00:35:39
interesting discussion we would want i think about it
00:35:43
i believe that the power of caregivers s. in many isn't it is
00:35:49
and uh it has to be taken into account
00:35:51
when we to design measures to treatment
00:35:56
which means you had a very strong boise disaster we implemented also in clinical trials
00:36:02
i mean it's not only about what you think about the evaluation of the
00:36:06
of the top one but it's also about you and your head status
00:36:10
so i that strong personal opinion about it i think that the
00:36:15
health assessment of the candy i should be part of it
00:36:18
of a clinical trial design because uh you translate also into
00:36:23
what it costs to human being to take care and then you have an economical case it
00:36:27
does this model to breed to policy makers and say this is the cost does is
00:36:34
where we need to act and make your case stronger actually you hardly you i one of the major
00:36:39
prayer because of the people we too we do take care of they don't have a voice
00:36:43
well it's it's i morality schizophrenia wages you know when i you have ever or they
00:36:48
can keep up you'll have a stronger voice ten your butt off one we see
00:36:52
so it's up to you would have to us actually to shape it and
00:36:55
uh let it happen thank you quickly respond to that one actually because
00:37:01
and i thank you for that because it's a constant fighting how much you can actually bring into clinical trial
00:37:07
and we do green measures of quality of life okay givers and burden of caregivers as well
00:37:13
it is exactly that though that if you go out
00:37:16
and speech external stakeholders about it's about recognising that
00:37:20
and i think that that's our policy really comes in as well to ensuring that this goes beyond
00:37:26
a only a patient and patient preferences is also from a from a family perspective
00:37:32
and ah ha i yeah this was not a question to come
00:37:36
up because out even when over enormously powerful war that
00:37:40
we have women leaders around the world on the woman should
00:37:42
also will probably richmond unusual him from india infer merger
00:37:47
all of them the mute with identify with all of these issues and the importance of them
00:37:52
so i will move up to uh we have a women's long slumbering of loathing personal more much
00:37:58
harm women rule the world of what what will avoid almost immediately to give where shovels
00:38:05
in europe your mobile form looking you have when mum but substrate
00:38:10
other christine logo loose over well the most powerful institutions on the world
00:38:15
well i am confident love the wants along and um but won't reply module for
00:38:20
a little more construction but a lot of over one of those those well with the when will the
00:38:25
world from speaking up and speaking up lee can change those so i would encourage you to
00:38:31
so we're gonna use of with a little energy you can fall in the mormon so
00:38:37
low level one mode of women around the world of how to create change
00:38:42
thank you i think they feel that energy in the room whenever we get
00:38:45
a group of women together let's thank our panel l. for joining us

Conference Program

Opening
Gautam Maitra, Founding Member, Women's Brain Project
Dec. 12, 2017 · 8:45 a.m.
168 views
Welcome Words
Maria Teresa Ferretti, President, Women's Brain Project
Dec. 12, 2017 · 8:48 a.m.
Welcome adress
Françoise Grossetête, member of the European Parliament
Dec. 12, 2017 · 8:55 a.m.
Presentation of the day
Sylvia Day, Forum host and WBP ambassador
Dec. 12, 2017 · 9:01 a.m.
Keynote
Khaliya
Dec. 12, 2017 · 9:04 a.m.
Introduction of Elena Becker-Barroso
Elena Becker-Barroso, Editor-in-Chief of The Lancet Neurology
Dec. 12, 2017 · 9:21 a.m.
231 views
Introduction of Gillian Einstein
Gillian Einstein, University of Toronto, Canada
Dec. 12, 2017 · 9:28 a.m.
Introduction of Else Charlotte Sandset
Else Charlotte Sandset, Oslo University Hospital, Norway
Dec. 12, 2017 · 9:39 a.m.
Introduction of Carol Brayne
Carol Brayne, University of Cambridge, UK
Dec. 12, 2017 · 9:44 a.m.
Introduction of Maria Teresa Ferretti
Maria Teresa Ferretti, President, Women's Brain Project
Dec. 12, 2017 · 9:52 a.m.
158 views
Introduction of Liisa Galea
Liisa Galea, University of British Columbia, Canada
Dec. 12, 2017 · 9:56 a.m.
Introduction of Lawrence Rajendran
Lawrence Rajendran
Dec. 12, 2017 · 10:03 a.m.
245 views
Introduction of Thorsten Buch
Thorsten Buch, Director, Institute of Laboratory Animal Science (LTK), University of Zurich, Switzerland
Dec. 12, 2017 · 10:08 a.m.
Introduction of Meryl Comer
Meryl Comer , President & CEO, Geoffrey Beene Foundation Alzheimer's Initiative
Dec. 12, 2017 · 10:59 a.m.
Introduction of Mary Mittelman
Mary Mittelman, New York University School of Medicine, US
Dec. 12, 2017 · 11:05 a.m.
Introduction of Angela Abela
Angela Abela , University of Malta, Malta
Dec. 12, 2017 · 11:13 a.m.
Introduction of Tania Dussey-Cavassini
Tania Dussey-Cavassini, Former Swiss Ambassador for Global Health, Switzerland
Dec. 12, 2017 · 11:20 a.m.
480 views
Introduction of Raj Long
Raj Long , Bill and Melinda Gates Foundation, Vice-Chair, World Dementia Council
Dec. 12, 2017 · 1:30 p.m.
201 views
Introduction of Antonella Santuccione Chadha
Antonella Santuccione Chadha , Swissmedic, Swiss Regulatory Agency, Switzerland
Dec. 12, 2017 · 1:32 p.m.
371 views
Introduction of Marsha B. Henderson
Marsha B. Henderson, Food and Drugs Administration, Office for Women's Health, US
Dec. 12, 2017 · 1:36 p.m.
Introduction of Maeve Cusack
Maeve Cusack, European Institute for Women's Health
Dec. 12, 2017 · 1:43 p.m.
Introduction of Hadine Joffe
Hadine Joffe, Harvard Medical School, US
Dec. 12, 2017 · 1:47 p.m.
Introduction of Maria Houtchens
Maria Houtchens, Harvard Medical School, US
Dec. 12, 2017 · 1:55 p.m.
Introduction of Valerie Bruemmer
Valerie Bruemmer, Senior Medical Advisor, Eli Lilly
Dec. 12, 2017 · 2:03 p.m.
Introduction of Malou Cristobal
Malou Cristobal, Polytrauma/ TBI / Vestibular Rehabilitation Program, New York Harbour
Dec. 12, 2017 · 2:08 p.m.
Wrap up of Panel Discussion 3
Raj Long , Bill and Melinda Gates Foundation, Vice-Chair, World Dementia Council
Dec. 12, 2017 · 3:23 p.m.
Presentation of Sofia, Robot
Sofia, Robot
Dec. 12, 2017 · 3:28 p.m.
Introduction of Nicoletta Iacobacci
Nicoletta Iacobacci , Singularity University Geneva
Dec. 12, 2017 · 3:32 p.m.
Introduction of Fabrizio Renzi
Fabrizio Renzi, Innovation and Technologies Director, IBM, Rome
Dec. 12, 2017 · 3:36 p.m.
Introduction of Joanna J. Bryson
Joanna J. Bryson , University of Bath, UK
Dec. 12, 2017 · 3:48 p.m.
Introduction of Myshkin Ingawale
Myshkin Ingawale, Facebook
Dec. 12, 2017 · 3:58 p.m.
Introduction of Kathryn Goetzke
Kathryn Goetzke, President, Chief Mood Officer & Founder, The Mood Factory, and Founder, iFred
Dec. 12, 2017 · 4:07 p.m.
Introduction of Nikolaos Mavridis
Nikolaos Mavridis , Interactive Robots and Media Labs, MIT, US
Dec. 12, 2017 · 4:13 p.m.
Keynote
Lynn Posluns , Women's Brain Health Initiative, Canada
Dec. 12, 2017 · 4:52 p.m.
Closing remarks
Mara Hank Moret
Dec. 12, 2017 · 5:12 p.m.
605 views
Thanks
Annemarie Schumacher Dimech
Dec. 12, 2017 · 5:16 p.m.
Closing song
Sylvia Day, Forum host and WBP ambassador
Dec. 12, 2017 · 5:23 p.m.